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Personal accounts
This section contains personal accounts of what it is like to live with autism.
Accounts on this website
- Alison Blake. A mother of a child with autism explains how her family struggled with sleep deprivation.
- Alyson Bradley. Alyson Bradley explains what it is like to be a person with Asperger syndrome.
- Charlie Edwards. Charlie Edwards explains what it is like to be a person with Asperger syndrome.
- Debbie Debbie explains how it feels to be diagnosed with Asperger’s syndrome at the age of 56.
- Julia Gardiner. Julia Gardiner explains what it is like to be a person with Asperger syndrome.
- the Goth. A man with higher functioning autism explains how he finds it difficult to understand other people.
- Liz Frances A mother of a son with autism.
- Naomi Naomi’s mother explains how getting a diagnosis and being cared for by the Disabilities Trust has made a difference to her daughter.
- PJ. A man with Asperger syndrome talks about living with the condition.
- Joe Powell talks about his struggles with mental health problems in this presentation called My life, Autism and Sunderland Football Club
- Various. Selection of personal views of Asperger syndrome from Beardon, L and Edmonds, G. (2007). ASPECT Consultancy Report. A national report on the needs of adults with Asperger syndrome. Sheffield: Sheffield Hallam University.
Accounts on other websites
- Jim Sinclair. Don’t mourn for us. Published in ‘Our Voice, 1993, 1(3)’. Read Full item on the Autism Network International site.
Research
- Chamaka B. et al (Epub ahead of print). What can we learn about autism from autistic persons? Psychotherapy and Psychosomatics, 77(5), pp. 271-279. Read Abstract
Do you have a story?
We want to know more about how treatment issues have affected people with autism. Life stories will assist us in raising funds so we can do even more to help.
Stories might relate to getting a job, to particular problems concerning behaviours, to sensory problems, to helpful treatment approaches, to unhelpful or misleading treatment approaches, to lack of information or guidance on the approaches out there and so on.
Personal stories can be made anonymous if people wish, but it is the detail that is so important.
If you can assist us by sharing your personal experience, please email judi.newman@researchautism.net or ring 0844 800 4438.
Alternatively, if you would like us to publish your story on this website please email info@researchautism.net
Please note that we reserve the right not to include your story if we feel that it is not appropriate.
Last Updated : 05/08/2008 Back to Top
