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Autism Research Undertaken by Organisations other than Research Autism

Two women writing key points This page provides details of autism research studies being undertaken by organisations and individuals other than Research Autism.

Information on each study is normally posted on this page for a period of 3 months. It is also posted on our social media channels including Twitter, Facebook, Google+ and Linked-In.

If you are involved in postgraduate research and would like us to help you with your study please download and return this form: Application for advertising for research participants

Please note that your study will need ethical approval from your university or other suitable body (such as the NHS) before being advertised.

We regret that we are unable to accept undergraduate research projects.

Thank you.


Cambridge Human Imaging and Longitudinal Development (CHILD) Study

Are you a pregnant mum with an autism spectrum condition, or are you a pregnant mum who already has a child with autism? 

This study is observing the early development of the baby in pregnancies where the mother or an older sibling of the baby has a diagnosis of autism.

If you decide to participate, you would be invited for an MRI scan in your last trimester of pregnancy, at the Rosie Maternity Hospital in Cambridge, so we can study your baby's brain even before birth. After your baby is born we will look at your baby's behaviour, including play, social behaviour, communication, and another MRI to look at their brain structure.

Separately, we’d like to find out about your experience of pregnancy and motherhood so that we can identify areas where support might be helpful for both autistic and not autistic mothers in the future.

There will be five visits in total: during your pregnancy (an in person visit for an MRI), when your baby is 2-3 months old (an in person visit for infant MRI), a 6-month (in person) visit, at 18-months (postal or online questionnaires only), and finally at 24-months (in person visit). 

If you live in the UK or in Europe we can pay for you to visit Cambridge, and we will reimburse all travel expenses and hotel accommodation, and you will receive an additional £20/visit for each visit. We will also give you a picture of your baby from your scan.

If you are interested in finding out more about this study or would like to take part, please contact Sarah Hampton or Ezra Aydin, by email infant.imaging.study@medschl.cam.ac.uk or by telephone (01223 465230).  

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Behaviour and Expression of Pain in Autism Spectrum Disorders

I am looking for participants over the age of 18 with a diagnosis of autism or Asperger’s to take part in a study investigating how pain motivates us and how we show that we are in pain. 

There are two parts, the first part you experience cold and hot temperatures and your facial reactions are coded.  During the second part you complete a joystick game. 

Your participation will be very much appreciated and for your time you will receive a £20 Amazon voucher.  During the joystick game there is a chance to increase this amount to £40 of vouchers.  The study takes an hour and will be at Liverpool John Moores University. 

If you would like to participate, more information, online screening and questionnaires (if you pass the screening) can be found at this link: https://ljmupsych.qualtrics.com/jfe/form/SV_71BipeFpk8Eg7gp

If you would prefer to have a talk please contact Sarah Vaughan: via email: s.vaughan@2010.ljmu.ac.uk 

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The Development and Feasibility trial of a Cognitive Behavioural Social Competence Therapeutic Intervention for Adults with Autism without an Intellectual Disability (SCTI-A)

We are looking for young adults aged between 18-25 years with a diagnosis of high functioning autism spectrum disorder to participate in our six week intervention. We are seeking to recruit participants to pilot a new group cognitive behavioural social competence intervention.

The six week intervention requires a commitment to therapy twice a week. Each week you will attend a 30 minute individually focused CBT session (which will require minor parent/caretaker involvement) and on a separate day you will attend a 2 hour group therapy session.

In this study we aim to investigate 
•    if the therapeutic intervention is acceptable for high functioning adults that are on the autism spectrum   
•    if the intervention has an effect on brain function
•    the relationship between brain functioning and ASD symptoms
•    if the intervention is effective at improving social competencies 

For further information part please contact: David Tate D.Tate@edu.Salford.ac.uk

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Oneline Survey on PECS

Batool Alsayedhassan and Dr. Devender Banda would like to find out more about the perceptions of parents and practitioners who have children with autism regarding the Picture Exchange Communication System (PECS).

This survey is targeting parents and practitioners (i.e., teachers, teaching assistants, speech language pathologists, clinic personnel, therapists, behavioral analyst) who have a child using PECS, or works with a child with autism or developmental disabilities whose facing communication difficulties and using PECS currently, or used PECS previously.

There are no right or wrong answers to the questions, just what you think. This survey will take about 15-20 minutes of your time, and we will use the results for a research study. We will not be able to identify you individually. Please do not put your name on this survey. If you would prefer not to answer a question, please leave it blank. Your participation is voluntary and you can stop at any time. Please submit the survey when you finish answering the questions.

If you have any question about this study, please call or email Dr. Devender Banda at (806-834-4827) devender.banda@ttu.eduand/ Batool Alsayedhassan at (865-308-9295) Batool.alsayedhassan@ttu.edu.

Here is the link for the survey: https://educttu.az1.qualtrics.com/jfe/form/SV_bIzALQXCcAHaxSd

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Colour Perception in Adults with Autism

The Sussex Colour Group at the University of Sussex are looking to expand their research into colour perception and memory in autism with a new set of experiments.

We are looking for adults aged 18-35 with autism or Asperger syndrome to come to one of our testing sessions at the University of Sussex in Falmer. Participants will complete questionnaires and colour perception tasks, some of which are done on a computer. Testing will take around 3 hours and you will be paid £8 for every hour.

Travel expenses (including petrol) can be reimbursed – please let us know where you are coming from and how much you expect it to cost.

If you are interested in taking part, or would like more information about our current or future studies, we would be delighted to hear from you! 

Please contact Jessica Banks, jessica.banks@sussex.ac.uk 

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Relationships Between Mindfulness, Self-Compassion, Stress, Wellbeing and Child Behaviour in Neurodisability

We would like to invite you to take part in a research study. The study aims to explore relationships between mindfulness, self-compassion, parental wellbeing, stress and child behavioural difficulties, in parents of children aged 4-17 years old with neurodevelopmental disorders (such as Autistic Spectrum Disorder, Attention Deficit Hyperactivity Disorder, Tics/Tourette's Syndrome, Intellectual Disability).  

Before you decide whether or not to take part it is important that you understand why the research is being done and what it would involve for you. 

What do I do next if I wish to take part? Please contact the researcher, Melissa Clapp, Trainee Clinical Psychologist either by emailing her on Melissa.Clapp.2015@live.rhul.ac.uk or leaving a telephone message on 01784414012. If leaving a message please make sure to say that you wish to speak with Melissa Clapp and leave a contact number and best day/time to contact you.

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Effects of Bilingualism in Children with Autism Spectrum Disorder on Syntactic Awareness

I am conducting research on the positive effects bilingualism could have on a child with autism language abilities. Many bilingual parents are told to only expose their child one language, however research is beginning to suggest bilingualism does not have any negative implications.

I am looking for monolingual and bilingual children with ASD between the ages of 8-13. The study would take place in the home of the participant and should take no longer than an hour.

The study will consist of 4 tests that your child will take part in. Three tests would establish your child’s vocabulary as to match the children on these scores rather than their age. The fourth test is a grammatical judgement test where children are asked if they think a sentence is correct or incorrect.

You the parent/guardian will also be asked to complete a small questionnaire. Email: psu2ad@bangor.ac.uk

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An Investigation into the Relationship between Autistic Adolescents’ Sense of Personal Identity and their Mental Health 

Adolescence can be particularly difficult for autistic individuals, as social expectations increase and peer relationships become more complex. There are also high rates of additional mental health problems for this group, therefore it is important to consider why this might be, to develop preventative and treatment methods.

Characteristic difficulties with interpersonal relationships in autism may inhibit an individual’s sense of personal identity, for example some autistic youths distance themselves from their autistic identity, whilst others embrace it. Research has also shown that if group membership provides individuals with a sense of meaning and belonging (i.e. a positive sense of social identity), it can have a positive impact on their psychological wellbeing.

The main aim of this study therefore is to examine how identity development in autistic adolescents relates to mental health outcomes. Autistic youth, aged 12-19, are needed to complete an hour-long interview with the researcher, to investigate the outline concepts. 

For further information please email Lily.Cresswell.2015@live.rhul.ac.uk

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Activation of the Social Brain and Mirror Neuron System in Children with an Autism Spectrum Condition

My name is Cassie Short and I am a PhD student at the University of Bolton, under the supervision of Dr Pedro Vital. I am currently recruiting participants for a project which aims to inform better practice in autism research.

This study aims to highlight the differences in brain responses to a typically utilised computer-based social task compared to engagement in an interaction. The results have the potential to achieve a more realistic understanding of social functioning in children with Autism Spectrum Conditions and inform future research methods in the field.

We are looking for children and one of their parents/guardians to participate together. You will be asked to attend the University of Bolton once, although preliminary visits are welcome.

Interpretation of the results will include insight from the autism community, through autism@manchester

Every participant will receive a report of the findings.

For more information, please email cas1ocd@bolton.ac.uk

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The Other Half of the Rainbow: Physical and Mental Wellbeing of Women in Relationships with Men on the Autism Spectrum

Dear women,

Are you/were you in a romantic relationship with a man for at least one year?

Is / was your partner/spouse on the autism spectrum? (Asperger's syndrome)?

If the answer to either of these questions is yes, and if you are at least 18 years old, you are invited to take part in a study that aims to question whether a romantic relationship which involves a neurotypical woman and a man with autism spectrum disorder is fundamentally different from a normative romantic relationship and how such a relationship affects the physical and mental state as well as the personal sense of wellbeing of women.

Participation involves completing a series of on-line questionnaires and should take no more than 20 minutes. Responses are completely anonymous.

If your partner is on the autism spectrum and you choose to participate, please send this invitation to a friend of yours who experiences a normative relationship and ask her to participate too.

For more information and for participation in the study, please enter the link:

http://relationshipstudy.info

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The Social Relationships Study 2.0 

This research aims to improve services providing assessment of children with social relationship and communication problems, by better understanding the key strengths and difficulties that make different groups of children distinct from each other. This may help to improve our ability to make quick and accurate diagnoses so that the appropriate treatment can be provided.

The research involves three meetings; one with you on your own (can be a home visit if preferred), and two meetings at the West Glasgow Ambulatory Care Hospital with your child. We will pay your mileage or a taxi and offer £20 participation fee.

If you live in greater Glasgow and Clyde, have a primary school age child with a diagnosis of autism spectrum disorder / Asperger’s syndrome, you can express interest via email: claire.davidson@glasgow.ac.uk, on 0141 2019239 or by text/call: 07547463177 and I will be able to tell you more about the study.

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Understanding the School Experiences of Siblings of Children with Autism

Do you have a sibling with autism? And are you in secondary school aged 11 to 16 years old?

My name is Alexandra Gregory and I am a Trainee Educational Psychologist studying the Doctorate in Educational Psychology at the University of Southampton. I am also a sibling to someone with autism. As part of my course, I am carrying out a research study that aims to explore the school experiences of siblings of children with autism.

If you are a sibling to someone with autism at secondary school (the child with autism can be any age up to 16), I would be really grateful for your participation. Taking part involves completion of an online questionnaire and will help to further our understanding in this area.

If you would like to find out more and/or would like to take part, please contact me at ag2g15@soton.ac.uk. Look forward to hearing from you!

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Gender Differences in Social Awareness - Motivation and Mental Health in Individuals with and without Autism

We are currently conducting important online research which aims to speed up the identification of autism in adults, especially in those whose autism is often masked or with mental health difficulties. We would like to invite all individuals to take part in the research, regardless of diagnosis or gender.

The study involves filling in an interesting survey made up of several different questionnaires and tasks related to social skills and awareness and also mental health. It should take you no longer than 20 minutes and if you choose to leave your email address at the end you could win £100s worth of Amazon vouchers!

For more information please contact Hannah.belcher@anglia.ac.uk. To take part please visit: https://aruspsych.eu.qualtrics.com/jfe/form/SV_0v4xMR49JQ2mryZ

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Comparison Between the Cognitive Profiles of Individuals over 50 Years of Age with and without an ASD Diagnosis

I am a trainee clinical psychologist at University College London. I am conducting a research project that compares cognitive and memory abilities in individuals over the age of 50 with a diagnosis of autism spectrum disorder (ASD) to those without.

We are looking to recruit a group of high functioning individuals over the age of 50 with a diagnosis of ASD to complete tests of memory, and cognitive abilities. You could choose to complete the tests either at your home, or elsewhere if so you choose.

All participants in this research will receive a report detailing their performance on gold standard tests of memory and IQ upon successful completion of the testing sessions.

If you are interested in my study or would like further information about the study, please do get in touch by contacting me on 07548542641 or email me at venus.tse.10@ucl.ac.uk

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Stress and Resilience Among the Parents of Children with Autism Spectrum Disorder: Felt Stigma and Perceived Supports: A Cross-Cultural Study

India, a country with collectivistic culture, has blindly adopted the established procedures and theories of western countries, which follow an individualistic culture. These western understandings are uncritically applied in developing countries like India. It is important to have a reliable model of stress and resilience for families or parents of children with autism spectrum disorder.

The study will investigate the different factors impacting on stress and resilience in UK and India. The aim of this research is to have a cross-cultural comparison, between the parents of children with ASD in the UK and in India, regarding the relationship of perceived social support and perceived emotional support with their stress and resilience.

You can find the online survey on the Qualtrics platform at https://aruspsych.eu.qualtrics.com/jfe/form/SV_8tVuo2fFMtpyhox  

Participants will have the chance to win an Amazon voucher worth £100.

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The Mental Health Needs of Adults with Asperger Syndrome and High Functioning Autism: A Parental Perspective

My name is Cirlei Ioris and I am a MSc student in Public Health at University of West of England (UWE). I am undertaking a research study that aims to explore parents’ views about the mental health needs of adults with high functioning autism (HFA) and Asperger syndrome (AS).

This study aims to give parents a voice about their views on the needs of people with autism and mental health. Their experiences and views may contribute to a better understanding of what type of support is needed to be in place for adults with high functioning autism and Asperger syndrome.

I aim to interview parents of adults (18+) with high functioning autism or Asperger syndrome who also present at least one mental health problem. I will provide a Participant Information Sheet if they want to know more about this research and what it will involve.

If parents would like to participate, they can contact me on my email: Cirlei2.Ioris@live.uwe.ac.uk or you can text me on 07767 671633. I will then contact them to answer any question they may have about this study, and if they would like to proceed we will arrange a convenient time and place for the interview.

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Study of Cross-Modal Influences on the Perception of Emotions for Children Diagnosed with ASD

This study has been designed to explore the emotions young people diagnosed with autism perceive visually and whether these can be influenced by emotional auditory stimuli.

We are looking for young people (aged 8 to 11) to take part in this valuable study. This will involve looking at social emotional pictures whilst hearing congruent/incongruent emotional music being played. The participant will tell us which emotion they are perceiving through the visual stimuli by pressing one of four buttons provided for them.

The tests have been designed to represent a game like experience, making it more appealing and entertaining to the young participants.

By taking part, you will enable the progress and completion of this exciting new study, contributing to the understanding of young people diagnosed with autism’s ability of perceiving emotions.

No travel is needed as the researcher will bring the equipment to the participant.

If you are interested, please email jtrot001@gold.ac.uk

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Conversations with People with Autism - a Survey of Partner Perceptions

Do you have conversations with someone with autism? If so, we want to hear from you. 

We have all heard about the difficulties people with autism have with reciprocal conversations but not enough is known about how this affects the interaction from the conversation partner’s point of view. This time we want you, the conversation partner, to tell us if any of the reported difficulties is problematic.

If you are 16 years of age or above and the person you have in mind can speak in full sentences and is more than 5 years of age you can participate in our online survey (link below). It will only take around 10 minutes to complete and the results may help us understand the conversational needs of people with ASD.

https://mqedu.qualtrics.com/jfe/form/SV_9npJU5JbLAKYoe1  

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Causal Attributions and Teacher Self-Efficacy in Relation to Restricted and Repetitive Behaviours in Children with Autism Spectrum Disorder

Restricted and repetitive behaviours (RRB) are key diagnostic characteristics for Autism Spectrum Disorder (ASD). Evidence for parent mediated management programmes focussing upon RRBs currently exists but little attention has been given to understand how teachers perceive and manage RRBs in their classroom. This study therefore aims to address a gap in the evidence base in relation to teacher’s attributions of, reactions to and management of RRBs. 

The study aims to recruit teachers who have worked with a child/children with a diagnosis of ASD in either mainstream or specialist educational provisions. Participation involves the completion of an anonymous 20-25 minute online survey (http://nclpsych.eu.qualtrics.com/jfe/form/SV_5C0LzmSRYRDCDMF).

Participants wishing to supply a contact email address at the end of the survey will have the chance to win one of three £20 Amazon vouchers. It is hoped that in the future these findings will contribute towards the development of a teacher mediated intervention programme for RRBs.

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Aligning Dimensions of Interoceptive Experience (ADIE) to Prevent Anxiety in Autism

Interoception is the ability to sense internal changes in the body such as heart rate. Some of our recent work has shown anxiety can be increased if there is a discrepancy between how well patients feel they can interpret bodily signals, such as their heartbeat, and how well they are actually able to do this.

We have found that helping people to be more aware of their ability, and to increase their ability to interpret signals from the body helps reduce and may prevent anxiety symptoms.

We would like to try out and compare a new treatment, Aligning Dimensions of Interoceptive Experience (ADIE), teaching ASC (autism spectrum conditions) patients these skills against the current treatment. 

You will receive £7,50 for every hour you spend with us and will be reimbursed for your travel to the University of Sussex where the study takes place. If you are interested to participate, please contact Charmaine Kohn Tel: 0300 304 0088 Email: AskAboutResearch@sussexpartnership.nhs.uk

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Related Pages

Quick link:
http://www.researchautism.net/take-part-in-autism-research
Updated
17 Nov 2017