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Autism Research Undertaken by Organisations other than Research Autism

We regret that we are no longer able to help promote external research projects via the Research Autism website.

However we are happy for you to promote your project via our Twitter channel and our Facebook channel, provided you have formal ethical approval from your university.


For Parents/Carers of a Teenager who has Autism and/or Intellectual Disability

If you care for an adolescent with autism and/or intellectual disability, you are invited to participate in an online survey titled ‘Physical activity and wellbeing in adolescents with autism and/or intellectual disability’

Why is the research being conducted?

We are interested in exploring the physical activity levels of adolescents who have autism and/or intellectual disability, and how physical activity levels are related to other wellbeing factors, including mental health, physical health, and health-related quality of life.  This research will highlight important wellbeing factors among a vulnerable population during a developmental stage that is both critical and opportune.

What you will be asked to do

If you decide to participate, you will be asked to complete an online questionnaire pack.  This will take approximately one hour to complete.  If you wish to stop and start your saved questionnaire you can do this but you need to press the "resume later" box in the bottom left hand corner of the page.  The questions include general demographic questions about your situation and about your child’s situation, as well as questions about your child that relate to mood, anxiety, self-help, quality of life, and physical activity. 

To participate, please visit our online survey
 
Contacts if you would like further information:  Dr Dawn Adams (chief investigator), Prof Deb Keen, and Annette Messenger (student researcher)
Autism Centre of Excellence, School of Education and Professional Studies. Email Annette.messenger@griffithuni.edu.au  

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Exploring Family Dynamics Within Neurodiverse Families

We are interested in hearing from families involving children with different developmental needs. For example we would like to work with parents from families where there is more than one child with a developmental condition – our research focuses on family dynamics and sibling interactions. If you have two (or more) children under the age of 16 who have developmental disabilities we would love to hear from you. We are interested to work with families with more than one child from the following groups (preferably with children with different developmental needs): 

  • ADHD
  • Autism Spectrum Disorders
  • Dyslexia / Language Impairment
  • Fragile X Syndrome

Taking part would involve completing a questionnaire pack, with the further option of a follow-up interview.

This research is being conducted at Durham University in the Centre for Developmental Disorders. 

Please contact one of the researchers below if you are interested in participating.

Researchers: heather.j.archer@durham.ac.uk; sarah.e.page@durham.ac.uk; catherine.e.stanford@durham.ac.uk

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Promoting Healthy Well-Being in Autistic Children Through Sleep Interventions: The Impact of Sleep on Mental Well-Being.

Up to 44%-83% of children with Autism (3-15yrs) experience some type of sleep disturbance. In their research, Turner et al found lack of sleep to have serious effects on neurodevelopment; also contributes to increased rates of emotional disturbances and social difficulties. The purpose of this research is to promote healthy sleeping in adolescents with autism. This will be done by examining sleeping habits in both adolescents with autism and typically developing adolescents . This exploration of sleeping habits may shed light on the differences (if any) between the sleep of typically developing adolescents and adolescents with autism, with the view to run an existing sleep intervention to promote sleep hygiene. Although sleep disturbance is not one of the diagnostic criterion of autism. It might be supposed that an intervention for the ASD population is an important way forward to encourage better sleep. 

Participants will be given questionnaires/information/consent forms, via email or postage, depending on their preference.

Participants should contact me via email alisha.khan.17@ucl.ac.uk and/or contact me on 07804826330 

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The Social Skills Peer Observation Tool (SPOT): A New Method of Assessing Social Skills

Why? We are developing a new way of assessing young women’s social skills. It is important to accurately assess social skills, so that we can explore whether treatments and trainings are effective in helping people develop their social skills. 

What? Young people who agree to take part will be asked to take part in a social performance task that involves filming a mock audition for a new reality TV show. All videos will then be entered in an online survey, which will be completed by peers of a similar age. 

How? We are looking for young women with Asperger syndrome/Autism aged 16-25 to take part. We are happy to come to you for the filming. Everyone taking part will be entered into a prize draw, to win an Amazon voucher of £50. If you wish to take part please get in touch with us on 0207 905 2168 or j.wolstencroft@ucl.ac.uk

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Bilingualism and Neurodevelopmental Disorders

The implications of multilingualism for a child with a neurodevelopmental disorder have not yet been established. Our study investigates social, cognitive, and linguistic development in typically developing monolingual and bilingual children as well as children Autism Spectrum Disorder (ASD) to understand the links between bilingualism and neurodevelopmental disorders. 

We are inviting monolingual or bilingual children with autism (3-12 years of age) and their parents to participate in this study about bilingualism and neurodevelopmental disorders. Participation involves your child completing brief one-on-one tasks with an experienced researcher either at school, at home or at the University of Cambridge (depending on your preference) for approximately 30 minutes of one or two sessions. Additionally, you, the caregiver, will be asked to fill out a questionnaire about the language use at your home and around your child. This takes about thirty minutes to fill in. If you choose to travel to the University of Cambridge your travel expenses will be reimbursed. 

If you wish to participate in this study or require further information, please contact Dr Ozge Ozturk on: +44 (0) 749 2301301 or ioo21@cam.ac.uk

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Sense of Self and Gender Identity in Young Females with an Autism Spectrum Condition.

The experience of females with an Autism Spectrum Condition (ASC) is poorly understood. Some autobiographical accounts discuss the pressure women with ASC have felt to “pretend to be normal”. It is unclear why this might be specific to females with an ASC. By exploring this further I hope to explore whether being female influences how young females, with an ASC, understand themselves.

The study will involve a photography based task and two interviews lasting approximately 30-40 minutes. A disposable camera will be provided. The interviews will take place at your preferred location e.g. at home or in a quiet and confidential space at your child’s school. Mileage or public transport costs may be reimbursed. If it is not possible to meet face-to-face we may decide to do the interview remotely. If you are interested in this study, please email amber.taylor@surrey.ac.uk 

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Investigating Changes in Social Network and Perceived Social Support in Relation to Transition to University

Are you aged 17-19, have a formal diagnosis of autism/Asperger’s/autism spectrum disorder, and are about to start your first year of university studies?

For many autistic students, starting university might be both an exciting and anxiety-provoking time. Compared to same-aged peers, autistic students may encounter many additional and unique challenges that require careful transition planning and on-campus support to facilitate successful integration into university life. 

To help us plan on-campus support and university transitioning programmes for autistic students like you, we invite you to take part in an online research study that aims to understand the changes in your social network and support structure, as well as difficulties you might be facing during first year of undergraduate studies.

You can complete the research study from anywhere by using a laptop, tablet, or mobile phone that has internet access via the link below:

https://bathpsychology.eu.qualtrics.com/jfe/form/SV_e9gLbQEakxmEIIZ

For questions, please contact Jiedi Lei (j.lei@bath.ac.uk).

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Social Skills in Autistic Teenagers

Researchers at University College London are interested in the skills shown by autistic teenagers during social interactions. This study will ask teenagers to complete some behavioural assessments which will be video recorded, and to complete questionnaires about their social and cognitive skills. The young person’s parent will also complete some questionnaires.

We are looking for young people with a diagnosis of an autism spectrum condition, with no intellectual disability, aged 13 to 19. The study takes around two hours total, including a break with refreshments. The researchers will come to your home, or travel expenses to come to University College London (near Euston station) will be reimbursed, up to £10 per adult and £5 per child.

If you are interested or would like to know more, please contact Laura at laura.hull.14@ucl.ac.uk or 02076 795365.

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An Exploration of How Fathers with Children Diagnosed with Autism Spectrum Disorder Experience Parenting and Support

My name is Kayleigh Belton and I am conducting a research project that explores the experiences of fathers who parent a child with autism spectrum disorder. The project aims to gain an in-depth insight into the issues faced by fathers with the goal of improving the kinds of support available to families.  

I am conducting interviews with 10 fathers who do not have a formal diagnosis of autism themselves but parent a child with autism. Each interview will last between 45 minutes to an hour and a half and will be conducted via Skype for convenience. 

If you are interested in taking part and are:

  • Aged 18 or over
  • The biological father of a child diagnosed with autism who is currently receiving formal support 
  • Married or in a co-habiting relationship

Please contact me at: 100340110@unimail.derby.ac.uk  for further information.

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Speech, Language and Movement in Children with Autism

We hope to find out more about speech and movement skills of children with autism in Scotland.

What does it involve? The project will use standard medical ultrasound to record the movements of the tongue during speech. We will compare these results to the results of standard assessments of speech, language and movement typically used in clinics. 

Purpose: Higher rates of speech errors have been found in children with autism. Information gathered from this study will help Speech and Language Therapists choose effective therapies to reduce the impact of speech errors.

How much time? Two 1-hour research sessions either at the University of Strathclyde, Glasgow or your child’s school (research team will arrange this). Travel expenses to the University of Strathclyde can be reimbursed.

If you are interested in finding out more, please contact Louise McKeever on louise.mckeever@strath.ac.uk or 0141 548 4393

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Identifying Early Behavioural Markers for Autism Spectrum Disorder in a High-risk Sample

For a PhD study we are attempting to identify early behavioural signs of autism in order to support early detection and treatment. We are therefore looking for babies between 3 and 12 months old who have an older sibling with a formal autism diagnosis. We use a method called ‘eye-tracking’ that allows us to see precisely where your baby is looking on a computer monitor when we show them different videos. We are also interested in early, natural interaction and therefore record a short sample of parent-child-experimenter interaction.

We would like to stress that we are not attempting to diagnose your baby. We are exploring babies' preferences and investigating differences between babies.

The study does not take longer than an hour and takes place at The University of Kent, Canterbury. Participating families receive a present.

We would hugely appreciate your help. If you are interested, please email Jolie Keemink (jrk26@kent.ac.uk).

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Gender Dysphoria and Autism: The Development of Gender Identity

There has been a recent increase in the number of people with ASD wishing to transgender, and there has been little research to account for why this has occurred. The proposed study aims to investigate gender identity development in males with a diagnosis of ASD and gender dysphoria, and males with a diagnosis of ASD alone. We aim to explore gender identity development by asking males in these two groups how they think their gender identity developed. 

I will ask participants to engage in semi-structured interviews regarding their gender identity development across the lifespan. They will also be asked to complete two tasks relating to how they feel about their bodies and what their social circles look like. The aim of these topics is to build rapport and assist in exploring sensitive topics.

The researcher will be happy to interview you at the National Autistic Society base if there is a room available, or at the Tavistock Gender Identity Clinic in London.  Participants will be given a £10 Amazon voucher for their participation in the study.

If you wish to know more about the study, or would like to be involved, please contact Laura Fisher on l.e.fisher267@canterbury.ac.uk

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Establishing Parent Perceptions of the Effectiveness of Private Clinic-Based Sensory Integration Therapy for Children with Autism.

As part of a Masters project I am seeking to interview parents of children with autism, who have undergone a course of Ayres Sensory Integration Therapy, in a private clinic based setting.

The purpose of the research is to highlight the therapy process from the perspective of a parent, the perceived outcomes from therapy and the impact of providing privately funded intervention for your child.

Interviews

The interviews will take place by telephone. All calls and interviews will be recorded for accuracy. There will be approximately 30 questions.

You will have the right to withdraw from the project at any stage. Names will be changed for the protection of identity. If you think you can help and are interested in taking part please email Gemma Carlier at carlier-g@ulster.ac.uk for further information.

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Flexible Scheduling to Prevent the Development of Disabling Resistance to Change

The study aims to develop and train parents of children 5-12 y/o in a flexible scheduling intervention to reduce disability associated with resistance to change.

Research shows that deficits in attention switching can be linked to the difficulties children with ASD can experience with changes to routines, plans or expectations.  It’s suggested that making sure that children’s routines and activities are flexible enough may help children to develop the cognitive skills necessary to deal with change. 

Research activities involved will include a telephone interview, focus groups, either at the university or via webinar, engagement in training in the intervention, implementation of the approach at home for up to 4-weeks, questionnaires and a computer game test for your child. If parents can travel for the focus groups or training, reimbursement of expenses can be arranged. 

Please contact us either at s.blackwell@bham.ac.uk or on +44 (0) 121 414 3335. 

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Intention Attribution Style in Adults with Autism Spectrum Disorders

You are invited to take part in a research study that aims to understand how individuals with ASD judge intentions when viewing other people’s actions. The ability to distinguish between intentional and unintentional behaviour is important in our day-to-day navigation of our social world. We hope that our study will help us understand how people with ASD make inferences about intentionality.

Participants are asked to travel to our lab at Goldsmiths University (New Cross Gate, London) and those who will be travelling from outside of London will be reimbursed for their travel costs. You will get an opportunity to discuss the aims and implications of the study with the researcher at the end of the session, we look forward to hearing your thoughts about our research.

To take part in our study or for more information please email Dr Rachel Slavny at r.slavny@gold.ac.uk quoting ‘ASD research at Goldsmiths’.

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Parents and Carers of Children and Young People with SEND: Do You Feel Your Views are Valued by Practitioners?

 It is intended that the findings of this doctoral study will be shared with education practitioners (professionals) in the hope that this will help to provide a better experience for families in the future.

It would really help to know what you think about the subject and what your experiences are. This online questionnaire will only take 5 minutes to complete and your response will be kept anonymous.
 
You can complete this questionnaire at: https://shusls.eu.qualtrics.com/jfe/form/SV_232MjPKljXgOCbj
 
My name is Katarzyna Fleming and I am a PhD researcher in the Sheffield Institute of Education, Sheffield Hallam University. Please contact me if you have any questions or would like to be kept informed of my study at Katarzyna.z.Fleming@student.shu.ac.uk

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An Analysis of Reading Habits, Motivators and Drawbacks in Autistic and Neuro-Typical Individuals

We aim to produce a support-based intervention for autism spectrum conditions (ASC), that will include contemplating fiction and using character perspectives to improve self-identity, understanding others and autism-specific social skills that are not constrained by neuro-typical values.

However, firstly we need to know how people with ASC contemplate texts and their preferences. In order to achieve this, we also need to know the differences that exist between people with and without ASC when contemplating different texts; so for the current study we are looking for participants with and without ASC.

Stage 1 is screening, including online questionnaires, following which, if successful, you will be invited to the University of Liverpool to take part in a focus group interview with 5 other participants. For social ease people with ASC will be interviewed together.

Anybody interested should have easy access to the University of Liverpool campus.

Please contact m.chapple@liv.ac.uk for more information.

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Aligning Dimensions of Interoceptive Experience (ADIE) to Prevent Anxiety in Autism

Interoception is the ability to sense internal changes in the body such as heart rate. Some of our recent work has shown anxiety can be increased if there is a discrepancy between how well patients feel they can interpret bodily signals and how well they are actually able to do this. We have found that helping people to be more aware of their ability, and to increase their ability to interpret signals from the body, helps reduce and may prevent anxiety symptoms.

We would like to try out and compare a new treatment, Aligning Dimensions of Interoceptive Experience (ADIE), teaching adult ASC (autism spectrum conditions) patients these skills against the current treatment. 

You will receive £7.50 for every hour you spend with us and will be reimbursed for your travel to the University of Sussex where the study takes place. Please contact Charmaine Kohn for more information. Phone: 03003040088 or AskAboutResearch@sussexpartnership.nhs.uk

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Social Stories Questionnaire: What Factors Impact on Effectiveness?

As part of our research on social stories we have just launched a new online survey for parents and practitioners to ask about your experience of using social stories.

We know that social stories can be a highly effective intervention for children with autism spectrum disorders (ASD) but the research suggests that this is not always the case. We are trying to better understand the factors that might impact on the effectiveness of social story interventions and would really appreciate your help and input on this area.
 
If you have used a social story with a child in the last 2 years and would like to help us with our research please consider completing this single questionnaire. It takes approximately 15-20 minutes to complete and will help us to better understand this popular intervention. 

To access the questionnaire please click on the link below: https://bathpsychology.eu.qualtrics.com/jfe/form/SV_bD7BZk1oJPfV3zn

You have the chance to win a £50 Amazon voucher. If you leave a contact email address or phone number at the end of the questionnaire you will be entered into the prize draw.

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Related Pages

Quick link:
http://www.researchautism.net/take-part-in-autism-research
Updated
14 Mar 2018